Patients associations
Association Déficit en Alpha-1 Antitrypsine (ADAAT)
Genetic disease: alpha-1 antitrypsin deficiency
Association helping patients with alpha-1 antitrypsin deficiency and their families by providing them with moral, administrative and material assistance.
Association pour la lutte contre les maladies inflammatoires du foie et des voies biliaires (ALBI)
Rare diseases of the liver and biliary tract
Association dedicated to provide information and support to patients and families afflicted by this group of diseases. Moreover, albi campaigns for early diagnosis and improved disease management.
Association Maladies du Foie depuis l'Enfance (AMFE)
Rare paediatric-onset liver diseases
Association providing moral, material and financial support, as well as promoting information and scientific research in the area of pediatric liver disease.
Association des Malades des Vaisseaux du Foie (AMVF)
Liver vascular diseases
Association working to improve awareness of liver vascular diseases among the general public, strengthen the bond between those afflicted, promote medical research and ensure financial support for the management of these pathologies.
European Liver Patients' Association (ELPA)
Liver diseases
Organization aimed at promoting the interests of people living with liver disease, promoting awareness and prevention of liver diseases, sharing the experience of successful initiatives and working with professional bodies such as EASL and with the EU to ensure that treatment and care are harmonized across Europe to the highest standards.
Hepatitis B Foundation
Hepatitis B
Nonprofit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide. Their activities include funding focused research, promoting disease awareness, supporting immunization and treatment initiatives, and serving as the primary source of information for patients and their families, the medical and scientific community, and the general public.
PHENIX - transplant recipients
Digestive grafts
Association dedicated to support and help patients who have received or are awaiting liver transplantation, as well as to defend their rights in the Lyon region.
SOS Hépatites
Viral hepatitis and liver diseases
Network of associations dedicated to preventing, informing and defending everyone concerned by viral hepatitis and liver diseases, regardless of the viruses and modes of contamination, as well as the promotion of research.
TRANS-FORME
Transplant and dialysis athletes
Association dedicated to the rehabilitatation of transplant recipients and dialysis patients through physical and sporting activity, promote medical research and to raise public awareness regarding transplantation and the need for organ and tissue donation.
Vivre Autrement Ses Formes (VASF)
People who are overweight or obese
Association which aims to inform, support and accompany people with obesity in the Lyon region.
